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Thread: Multicentric Castleman's Disease
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08-08-2014 #21
Re: Multicentric Castleman's Disease
I'm sorry to hear about your illness Bella. I hope you get better and feel better soon. How's your kid handling all of this?
I don't suffer from insanity, I enjoy every minute of it ...
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08-08-2014 #22
Re: Multicentric Castleman's Disease
He's aware of the seriousness, but not my odds. I wanted him to know but not be scared to death about it. He was just here for two months and there was just no way to mask the symptoms. I took a LOT of pain meds and made sure to do as many things with him as I could. We did amusement parks (I was dumb enough to go on a wooden coaster - WTF was *I* thinking?), the beach, Griffith Observatory, cookouts, and of course we went shooting, which is always a blast. *rimshot*
He's nervous, but thankfully not terrified. Me? I'm exhausted.
Here's a video of him shooting an AR-15. Believe me. We tried to keep his mind off of my condition and how better for an 11-year-old COD addict?!
https://www.facebook.com/photo.php?v...type=3&theater
~BB~
3 out of 3 members liked this post.
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08-08-2014 #23
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08-08-2014 #24
- Join Date
- Feb 2008
- Posts
- 4,709
Re: Multicentric Castleman's Disease
Thank you for letting us know. I hope that you respond to treatment and that the side effects of your medicines somehow abate. That sounds tough. Best wishes!
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08-08-2014 #25
Re: Multicentric Castleman's Disease
Very sorry to hear about your battle with MCD Bella...wishing you all the best.
Phone keys gum condoms lube...I don’t want to be normal.
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08-08-2014 #26
Re: Multicentric Castleman's Disease
Sorry to hear your news, Bella.
Autoimmune conditions suck. I was diagnosed with sarcoidosis in 2004 and have been on steroids since then and have therefore seen most of the side effects and consequences of long term steroid use.
I'm sure you'll buck any of the depressing statistics ...
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08-08-2014 #27
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08-08-2014 #28
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08-08-2014 #29
Re: Multicentric Castleman's Disease
Sorry to hear about your condition and I really do wish and hope for you the best in this horrible problem you are facing. I also really appreciate you sharing your story and knowledge and hopefully it can help educate us all and give us a little pause before our actions. Brave of you! Take care Bella.
1 out of 1 members liked this post.
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08-08-2014 #30
Re: Multicentric Castleman's Disease
Multicentric Castleman’s Disease (MCD)
http://immunopaedia.org.za/index.php?id=1001
Siltuximab Injection Sylvant
Siltuximab injection is used to treat multicentric Castleman's disease (MCD; abnormal overgrowth of lymph cells in more than one part of the body that may cause symptoms and may increase the risk of developing a serious infection or cancer) in people who do not have human immunodeficiency virus (HIV) and human herpesvirus-8 (HHV- infection. Siltuximab is in a class of medications called monoclonal antibodies. It works by blocking the action of a natural substance that causes increased growth of lymph cells in people with MCD.
http://www.nlm.nih.gov/medlineplus/d...s/a614028.html
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