Multicentric Castleman's Disease

[BellaBellucci]

Multicentric Castleman’s Disease (MCD)
http://immunopaedia.org.za/index.php?id=1001

Siltuximab Injection Sylvant
Siltuximab injection is used to treat multicentric Castleman's disease (MCD; abnormal overgrowth of lymph cells in more than one part of the body that may cause symptoms and may increase the risk of developing a serious infection or cancer) in people who do not have human immunodeficiency virus (HIV) and human herpesvirus-8 (HHV- infection. Siltuximab is in a class of medications called monoclonal antibodies. It works by blocking the action of a natural substance that causes increased growth of lymph cells in people with MCD.

http://www.nlm.nih.gov/medlineplus/d...s/a614028.html

I'm aware of Sylvant. The trials look good. It's brand-new, though. Inevitably, I'll either be on this or another IL-6 blocker, and/or maybe chemo.

~BB~

[tsadriana]

Hi Bella ,your a strong caracter and im absolutely right that you will gonna beat this nasty thing....At least your sense of houmor and your strong attitude still there ,wich means you are a fighter...You will gonna beat this for sure...Love and peace x

[giovanni_hotel]

DAMN Bella!!

I was not expecting this from your return post. Keep fighting.

Why have I never heard of this disease before, and do you have any idea how you were exposed to it???

I feel like I just got kicked in the head.

[BellaBellucci]

Hi Bella ,your a strong caracter and im absolutely right that you will gonna beat this nasty thing....At least your sense of houmor and your strong attitude still there ,wich means you are a fighter...You will gonna beat this for sure...Love and peace x

Thank you, love.

DAMN Bella!!

I was not expecting this from your return post. Keep fighting.

Why have I never heard of this disease before, and do you have any idea how you were exposed to it???

I feel like I just got kicked in the head.

You've never heard of it because it's just that rare. And no, they have no idea how I got it. I have a few suspicious, but they're not medically validated - I've gone from living on adrenaline to relative calm in my life (stress response), or maybe it's genetic since I know I've had waves of these symptoms for years before my diagnosis.

~BB~

[fred41]

I'm sorry life threw you this curve Bella.
Especially something so out of the blue...and so devastating.
You'll beat it though...you've shown yourself to be pretty determined.
You have my best wishes...I hope you are comfortable..and I hope you beat this thing.
I'm sure you will.

...and , Damn...I hope there's a silver lining in all this for you... somewhere.

[livepersona]

Where you doing the rimming or getting rimmed? And can you get it by both?

[BellaBellucci]

Where you doing the rimming or getting rimmed? And can you get it by both?

OMG!

Again - *I* didn't get it from rimming, but when it is transmitted that way, the recipient is the partner at risk.

~BB~

[Bobby Domino]

I don't mean to rehash this for others on the forum but I've been away for a while and was curious about Bella and what she was up to.

Really sad & shocked to hear, Bella. I can't say more than what others have said only that I hope you beat this thing and that the treatments they're giving you slow it down so you can regain a normal life. Thank you for your courage and honesty. You're a wonderful, curious person and a loving mom.

It's always been a pleasure to talk to you and discuss your perverse naughty imaginations. I hope you get better soon so we can have you back

A thousand kisses and a million hugs, love.

[BellaBellucci]

Thanks again, everyone... especially Bobby. That was one of the most compassionate things anyone has said to me since this whole thing started. I know I'm supposed to be the tough chick and all that, but that doesn't mean that I (or really anyone else for that matter) want to endure this while surrounded by callous people. And believe me, there have been plenty.

<3 you guys!

~BB~

[Ms.Stepford]

I'm sorry to hear this, and I wish the best for you, but thank you for the awareness.