Anaplastic Large Cell Lymphoma

[BellaBellucci]

Hey there all. I just wanted to update the earlier post about my health condition. After an excisional biopsy of some of my lymph nodes, it's been determined that I don't have Castleman's Disease after all. I actually have lymphoma. My survival odds are 15-45% over 5 years.

I'm not sure what else to say. I really just wanted to update my prior post for accuracy. Thanks all.

~BB~

PS: Castleman's is still a real threat. Be safe out there!

[wearboots4me]

Sending good thoughts your way, Bella.

[nysprod]

Wishing you all the best, Bella.

[flabbybody]

I have a family member with ALCL and she's been in remission for several years. Her docs only make her go for scans twice a year now, down from once every 3 months. And new treatment regimens are fast and furious, almost too quick for internet to keep up.
Hang in there Bella

[nysprod]

Bella, are you alk positive or negative?

[Merkurie]

Wishing you strength in fighting this.

[Prospero]

Beaming best of wishes and hope for your sustained health from across the Atlantic

[Veal Cutlet]

Keep your chin up and just do not give up! I wish you the best and pray that you beat this.

[BellaBellucci]

Bella, are you alk positive or negative?

I'm neg, of course. Fate wouldn't want any of my challenges to be even slightly easier it seems. Ugh.

~BB~

[hwbs]

im really sorry to hear that ....i have been through a lot of tests for lymphoma and a couple other things and recently had to have a bone marrow biopsy since up to this point... my oncologist / hematologist cant seem to find the problem up till this point..if this doesn't yield any result i will have to get a pet scan next..the whole process has really affected every aspect of my life...i wish you well on your journey !!!

[buttslinger]

I'm neg, of course. Fate wouldn't want any of my challenges to be even slightly easier it seems. Ugh.

~BB~

Looks like it's time for you and fate to have a little private meeting. All the best for you, Bella.

[CORVETTEDUDE]

Praying for you, Bella. Stay positive, miracle do happen.

[BellaBellucci]

im really sorry to hear that ....i have been through a lot of tests for lymphoma and a couple other things and recently had to have a bone marrow biopsy since up to this point... my oncologist / hematologist cant seem to find the problem up till this point..if this doesn't yield any result i will have to get a pet scan next..the whole process has really affected every aspect of my life...i wish you well on your journey !!!

OMG! I'm so sorry to hear that. Funny, though. During the eight months it took for them to diagnose me, all I wanted was a treatment plan. Now I'm not so sure. Luckily CHOEP Chemo is GENERALLY well tolerated, but I've been in pain for so long (even when I was still shooting content), that the mere prospect of more is draining to me.

Best of luck. I hope you get a better diagnosis than I did. :kiss:

~BB~

[ed_jaxon]

Keep fighting Bella. We are all pulling for you to beat this!

[Ecstatic]

Wishing you all the best, Bella. It's a nasty turn of events, but you're strong and I'm pulling for you. I think I told you my niece beat breast cancer recently, so I hope you survive this. I don't know what to say, but I am here for you.

[Plaything]

There aren't really any words. But I wish nothing but the best of outcomes for you xx

[Rusty Eldora]

Hey there all. I just wanted to update the earlier post about my health condition. After an excisional biopsy of some of my lymph nodes, it's been determined that I don't have Castleman's Disease after all. I actually have lymphoma. My survival odds are 15-45% over 5 years.

I'm not sure what else to say. I really just wanted to update my prior post for accuracy. Thanks all.

~BB~

PS: Castleman's is still a real threat. Be safe out there!

Well at least they now know what to treat, I am sure this has been agonizing. I truly wish you the very best in this tough, tough journey. My thoughts are with you.

-Rusty

[NearBostonMass]

Bella, I'm sorry to hear about your diagnosis. I hope you have some friends and family to help you out over the next few months. If you don't please feel free to bend my ear.
I just finished Chemo and Radiation for Hodgkins Lymphoma, which is pretty much the type of diagnosis you do want if you have Lymphoma. However, I was told that the ABVD Chemo and Radiation to my Head, Neck and Face is considered pretty difficult.
Please feel free to ask me any questions you might have or just rant.
Please try to stay positive. Despite the difficulty of your present situation your best years can still lie ahead of you.

[dyxe20]

Sorry to hear..stay strong.

[BBaggins06]

I'm so sorry to hear your diagnosis Bella. Best of luck with your treatments. My thoughts and prayers go out to you and your son as you fight this terrible disease.

[dreamon]

You can beat it! It will be hard at times sure but keep up the fight and a positive attitude and you'll be better before you know it!

[BellaBellucci]

Hey guys!

So I have a quick update. I'm 'making progress.' I have a PT scan next week and then after that I might be declared 'in remission.' My fingers are crossed. I quit modeling in Oct 2013, so now that I know treatment is effective, the only thing left to deal with is side effects and fighting for almost a year's worth of SSDI benefits in arrears.

I still don't think I'll be returning to modeling tho. I'm gonna have extreme fatigue for another year and will be scarred up for longer than that as I've had three surgeries cause them. The one for my portacath will be especially visible.

That said, if anybody wants to get into the webmaster game, my site is still for sale. It's called Bella-XXX, which is generic enough to rebrand. The site is built. There's some good SEO on it, and it's easy to operate - just plug and play. And yes, I can be here for a reasonable amount of tech support. I'm about two months behind on bills, so it needs to go. Total-TG.com, which has a 2000+ account user list is also available. I'm asking $1500 each. For Bella-XXX, I'll consider a discounted sale price and points on the back end if I like your business plan.

Now that I'm pretty sure that I have a future, it's time to plan it! Hopefully there's someone out there who thinks we can help each other out.

Added benefit?! You'll be making the t-porn industry happy to be rid of me! ;)

~BB~

[MrBlonde]

I'm really happy to hear you are doing better. Stay strong and keep going in the right direction!

[Michelle.]

Keep your head,up and moving forward. I hope your around to create waves for many years to come.